LOS ANGELES, Dec. 19, 2014 /PRNewswire/ — The West Los Angeles Veterans' Administration Medical Center (West LA VAMC) has taken an important first step to help victims suffering with malignant pleural mesothelioma (MPM), by establishing a Comprehensive Mesothelioma Center at the West LA VAMC.
"Unfortunately, the center is not on the radar," said Clare Cameron, executive director of The Pacific Meso Center. "There is no mention of the Center on the VA website and many doctors in the VA system aren't clued in as to where to get advice or how to utilize the system. In the meantime, veterans are being misdiagnosed or needlessly suffering without access to specialized care."
The Comprehensive Mesothelioma Center (CMC) in West Los Angeles is headed by Dr. Robert B. Cameron, MD, FACS. His team includes doctors and nurse practitioners who specialize in the areas of pathology, radiation, pulmonary (lung), oncology (cancer) and anesthesia. All have extensive experience with diagnosing and treating MPM, an asbestos-related cancer affecting the lining of the chest - the pleura.
The Pacific Meso Center (PMC) at the Pacific Heart Lung & Blood Institute, a 501(c)(3) non-profit research organization, focused on finding better treatments for victims of MPM, has issued a protocol to help mesothelioma sufferers navigate the system and get to the right specialists in time:
Step 1: The patient should inform his or her doctor at his local VA facility about the specialized treatment available at West LA VAMC - the only specialized mesothelioma treatment center in the VA system.
Step 2: Ask the local doctor to contact the West Los Angeles VAMC and request an "inter-facility" consult through the VA's "TeleHealth" program. The person to contact is Almaz Tesfasilase, the cardiothoracic surgery case manager at the West LA VAMC, at (310) 268-4543.
Step 3: Doctors at the CMC will conduct a "virtual consult" by reviewing the patient's medical records and films. They can then assist the local VA doctor with determining the precise diagnosis and recommending a course of treatment.
Step 4: If appropriate, the patient can be referred to the West LA VAMC for specialized treatment. A patient referred to the CMC will have travel expenses paid for by the VA. While in Los Angeles, complimentary lodging will be arranged at the Fisher House, the new West Los Angeles Hotel or a local hotel. The CMC will also arrange for transportation between the hotel and the medical center.
The PMC acknowledges the support of the John Johnson family. John Johnson was a veteran who passed away from mesothelioma in 2012. According to Michael Johnson, "My father might be alive today if he had access to specialists within the VA, but by the time he had heard about Dr. Cameron and his team from friends outside of the VA, it was too late." Johnson's 501(c)(3) non-profit, J.J. Mesothelioma Foundation | Fight Mesothelioma Now!, has a mission to reach out and help mesothelioma sufferers and their families with encouragement and advice, and guide them to the right people at the VA. See Johnson's step by step video guide.
For further information, please contact:
Clare Cameron – 310-478-4678
Friday, December 19, 2014
Monday, December 15, 2014
Son of a Mesothelioma Victim Urges VA Secretary of Health to Fund Medical Program Dedicated to Veterans Stricken with Asbestos Cancer
LOS ANGELES, Dec. 12, 2014 /PRNewswire/ -- The Pacific Meso Center (PMC) is urging the US Veterans Administration (VA) to enhance mesothelioma healthcare services at the West Los Angeles VA Medical Center (VAMC). Mesothelioma is an aggressive cancer caused by asbestos exposure. Nearly one-third of the 3500 Americans diagnosed annually with mesothelioma were exposed to asbestos in Navy shipyards or military facilities, making veterans among those most at risk for this cancer.
The campaign to establish a comprehensive meso center at the West LA VA was spearheaded by the family of John Johnson, a former US Marine who lost his battle with mesothelioma in 2012. They believe that if Mr. Johnson had had timely access to specialized care, he might be alive today. The family has pledged substantial funds to help create, publicize and build the program, citing the need to prevent other veterans from receiving substandard care.
The US Government has never fully funded a medical program dedicated to veterans stricken with asbestos cancer. The Comprehensive Meso Center will give veterans access to an early diagnosis, optimal treatments, and leading mesothelioma specialists, including Robert B. Cameron, MD, FACS, who pioneered the innovative lung-sparing surgery for patients with malignant pleural mesothelioma.
While veterans fortunate enough to know about this Center receive an unprecedented high standard of care, the Center itself remains a virtual secret. The Center and its specialized services are not mentioned on the VA's website.
In an online video plea Michael Johnsons Powerful Message to VA Secretary Robert A. McDonald, Michael Johnson, John Johnson's son, said, "We're asking the VA to simply educate doctors and veterans via its website and media promotions so that veterans can learn about resources at this Center. How many veterans have to die to get your attention?"
SOURCE Pacific Meso Center
The campaign to establish a comprehensive meso center at the West LA VA was spearheaded by the family of John Johnson, a former US Marine who lost his battle with mesothelioma in 2012. They believe that if Mr. Johnson had had timely access to specialized care, he might be alive today. The family has pledged substantial funds to help create, publicize and build the program, citing the need to prevent other veterans from receiving substandard care.
The US Government has never fully funded a medical program dedicated to veterans stricken with asbestos cancer. The Comprehensive Meso Center will give veterans access to an early diagnosis, optimal treatments, and leading mesothelioma specialists, including Robert B. Cameron, MD, FACS, who pioneered the innovative lung-sparing surgery for patients with malignant pleural mesothelioma.
While veterans fortunate enough to know about this Center receive an unprecedented high standard of care, the Center itself remains a virtual secret. The Center and its specialized services are not mentioned on the VA's website.
In an online video plea Michael Johnsons Powerful Message to VA Secretary Robert A. McDonald, Michael Johnson, John Johnson's son, said, "We're asking the VA to simply educate doctors and veterans via its website and media promotions so that veterans can learn about resources at this Center. How many veterans have to die to get your attention?"
Supporters of the Comprehensive Meso Center ask that it be called the "Elmo Zumwalt Comprehensive Mesothelioma Treatment & Research Center," in honor of the Navy Admiral who succumbed to mesothelioma. In addition, advocates are petitioning Secretary McDonald for VA funding of $5 million per year to cover the Center's expansion costs. "With adequate financial backing, the Center can provide comprehensive treatment services to an increased numbers of veterans nationwide. Funding also will allow top scientists to conduct clinical trials to benefit veterans diagnosed in the future," said Clare Cameron, Executive Director of the PMC.
For further information, please contact:
Clare Cameron - 310-478-4678
www.phlbi.org
Clare Cameron - 310-478-4678
www.phlbi.org
Tuesday, December 9, 2014
Secretary McDonald, Here is a Win-Win, The Mesothelioma Center of Excellence.
Dear
Secretary McDonald:
Here’s
a win-win for you, as you emerge from the wreckage of the “death by waiting
list” imbroglio.
Thanks
to the courage of Dr. Dean Norman and Dr. Robert Cameron, the VA Medical Center
in West Los Angeles has established a Comprehensive Mesothelioma Center. For Navy vets exposed to asbestos while
serving their country, mesothelioma is a war-related disability. It’s estimated over 1,000 vets annually are
diagnosed with this insidious cancer. But until now the VA has never built a
treatment program, as it has for Agent Orange, nuclear radiation and PTSD.
The CMC is a giant and long overdue step in the right direction. Unfortunately, the VA has not publicized the program, veterans don't know about it, very few VA doctors outside of LA are aware of it, and it’s not well funded. Ironically, the problem is the lack of a waiting list. Consequently, veterans are suffering without access to specialized care.
You
can easily change this. And, for the thousands of vets now and in the future
with mesothelioma who will be fighting for their life, you should. Please click here to view a video I prepared on the problem and solution.
I
have written to you and your predecessor before, without any return comment.
Please respond. I am available to fly to Washington DC to meet with you in
person.
Thank
you for your service.
Thursday, December 4, 2014
The Pacific Meso Center Receives $100,000 Donation for Ongoing Stem Cell Research Program
LOS ANGELES, Dec. 3, 2014 /PRNewswire/ -- Citing the need
to invest in a long-range cure, Roger Worthington of the Worthington &
Caron, P.C. donated $100,000 to The Pacific Meso
Center
(PMC) at The Pacific Heart, Lung & Blood Institute (PHLBI) to support its
ongoing stem cell research program. Worthington jump-started the research
last December with a similar donation.
Dr. Raymond Wong of the Pacific Meso Center |
The PMC
is dedicated to finding a cure for mesothelioma, a potentially life-threatening
cancer affecting the pleura - the lining of the chest. Tens of thousands of
veterans exposed to asbestos during their military service are now at risk for
developing mesothelioma. Thousands of veterans have already been diagnosed with
this disease.
"Veterans
need our help," Worthington said. "I'm hopeful that with this
donation the Federal Government will recognize the potential therapeutic merits
of stem cell research and more than match it, for veterans and all Americans
struggling with mesothelioma."
Mesenchymal
stem cells (MSCs) – "pluripotent" adult stem cells that can
differentiate into several types of cells -- are currently one of the most
promising areas of anti-cancer research. Mr. Worthington's donation will help
fund critical clinical studies affiliated with the new Comprehensive Meso
Center at the West Los Angeles(WLA) Veterans' Administration (VA). Robert B.
Cameron, MD, FACS, a Scientific Advisor to the PMC, is the Founder and Director
of the WLA VA Comprehensive Meso Center.
The
Comprehensive Meso Center will not only offer essential patient services –
including specialized diagnostics and therapeutics – to meet the healthcare
needs of Veterans with mesothelioma in Southern California, but will also sponsor innovative clinical trials on
patients with mesothelioma. In 2014 the PMC joined forces with the West LA VA
to launch a seminal stem cell research program aimed at developing innovative
therapeutic approaches to mesothelioma, which disproportionately affects
veterans. In keeping with the PMC's mission to eradicate this cancer, the
overreaching goal of the stem cell research project is to discover breakthrough
treatments that halt the rapid progression of mesothelioma and to eventually
find a cure for this aggressive cancer.
The
PMC's end-of-the-year goal is to match Mr. Worthington's gift with an additional
$100,000 from its donors at large. Contributors from all walks of life have
helped to sustain the PMC. Donations, large and small, are a key to translating the
organization's laboratory research into effective pharmaceutical treatments in
the clinic. "We are very fortunate
to have continued with significant support from Mr. Worthington," Dr.
Cameron said. "We are also grateful to all those who can contribute to
this special campaign at this turning point in the PMC's history. Their
collective donations will accelerate our search for novel therapies to improve
both the longevity and the quality of life of those battling this devastating
disease."
For
further information, please contact:
Clare
Cameron - 310-478-4678
Website: www.phlbi.org
SOURCE
The Pacific Heart, Lung & Blood Institute
Worthington & Caron Mourns the Loss of 18 Year Meso Survivor Jill Vaughn
Stories
of hope can be rare when talking about mesothelioma, even more rare than the
aggressive cancer itself, but they do exist, giving us pause, that maybe we can
fight this disease…and win. Jill Vaughn was one of these stories. She was a
long time cancer survivor before finally passing away from mesothelioma this
past month.
Jill
was diagnosed with two different types of cancer between the 1970s and 1980s
before she was diagnosed with mesothelioma in 1996. Upon her diagnosis she took
to the internet to learn more about her disease. In 1996 there simply wasn’t
much information about mesothelioma out there, online or elsewhere. Jill came
across our firm’s website www.mesothel.com, which was unique in that it shared
detailed profiles of others with mesothelioma, their stories and which
treatment regimen they used. Jill found it difficult to read about people’s
struggles, but also helpful in determining which path was right for her.
Jill
traveled all over the country seeking the right medical treatment for herself.
She originally was set to undergo surgery to remove her entire lung, but awoke
to find that she still had both her lungs. Jill’s surgeon told her that her
cancer was too far advanced, and that leaving the lung in would allow her to “die
easier”. Her surgeon then estimated she had six months to live.
The
fact that she survived 18 years with mesothelioma is exemplary, she didn’t
waste that time either. Jill was a brave mesothelioma advocate, sharing her own
story to hopefully help others with mesothelioma, just as she had found help
reading other profiles. Jill not only helped mesothelioma patients, but also
volunteered for MD Anderson Network and Bloc Cancer Center to give support to
others with cancer.
Jill’s
advice to others was, “Attitude is what it’s all about, it’s your life preserver.
So hang onto it very tight!” Thank you Jill, for never giving up and for your
fight as a true mesothelioma warrior.
Thursday, November 20, 2014
WR Grace Exits Bankruptcy After 13 Years, Was it Worth the Wait? You Decide
After
ducking asbestos claims for 13 years, W.R. Grace in February of this year
finally emerged from Chapter 11 bankruptcy.
W.R. Grace was one of the worst polluters on Earth. At the time they
filed, they were facing over 100,000 personal injury and death cases, primarily
stemming from the use of fireproofing and plaster products. W.R. Grace gained notoriety as the company
which contaminated the tiny mountain town of Libby, Montana with tremolite
asbestos from the mining of asbestos laced vermiculite.
At the
time they filed, in 2001, WRG stock was around $1.50 a share. When they emerged
from bankruptcy protection 13 years later, the stock was selling at $92 a
share. It pays to duck responsibility? You decide.
Part of
its court-approved bankruptcy reorganization plan was the establishment of two
trusts to pay personal injury claimants and property owners. The trusts are funded by more than $4 billion
in cash, stock warrants, insurance proceeds and other sources.
This
August, the trust began accepting Proof of Claim forms. According to their
Trust Distribution Procedures, (basically their instruction manual) the
Scheduled Average Value for a claimant diagnosed with mesothelioma is $180,000.
The value for asbestos-related lung cancer is $42,000. However, the actual
payment percentage is 26% of the Scheduled Value.
A
claimant is free to seek a value greater than the Scheduled Value by requesting
the Trust perform an Individual Review of the claim. However, this does not
guarantee a greater value or even an equal value as the Scheduled Value. The
Maximum Value for this type of review for a mesothelioma claim is $450,000
before applying the liquidated payment percentage of 26%. For an
asbestos-related lung cancer, the Maximum Value of an Individual Review claim
is $95,000
To
qualify for payment, a claimant must provide credible medical and exposure
evidence as defined in the instruction manual (TDP).
The
claims are paid on an impartial first-in-first-out basis.
Now, if
a claimant was unfortunate enough to have filed a claim prior to April 2, 2001
against WRG as a part of a lawsuit but was never paid, they would have to
follow the conditions outlined in the TDP, but the claim would be reviewed
sooner.
The WRG bankruptcy is the longest in a long line of bankruptcies filed by the asbestos superpowers. It's a sordid tale, and a long and desolate trail, but for those with the stomach, and the patience, here's a timeline. As they say, justice delayed is justice denied. What do you think? Will MBA students be studying the WRG bankruptcy as an example of what not to do in corporate america? Or will they be looking at it as a brilliant business move that saved the company billions and enriched thousands of shareholders?
The WRG bankruptcy is the longest in a long line of bankruptcies filed by the asbestos superpowers. It's a sordid tale, and a long and desolate trail, but for those with the stomach, and the patience, here's a timeline. As they say, justice delayed is justice denied. What do you think? Will MBA students be studying the WRG bankruptcy as an example of what not to do in corporate america? Or will they be looking at it as a brilliant business move that saved the company billions and enriched thousands of shareholders?
You
decide.
In
April of 2001, WRG is named in more than 325,000 asbestos-related
personal injury lawsuits. They soon
announce they have filed for voluntary Chapter 11 bankruptcy protection.
In May
of 2001, WRG gets approval from the U.S. Bankruptcy Court to receive a $250
million loan from Bank of America, to help support operations.
In
February of 2003, WRG asks the U.S. Bankruptcy Court to allow an extension of
its $250 million loan agreement with Bank of America for another three years.
In
October of 2004, WRG makes a request to delay filing a reorganization plan,
hoping to continue negotiations with creditors.
WRG also is notified they are a target of a federal grand jury
investigation, facing indictments on several charges including interfering with
an EPA investigation, violating the Clean Air Act and placing asbestos
materials in schools and local residences and conspiring to conceal the
resulting health problems.
In
November of 2004, WRG files a reorganization plan with a Delaware court which
is soon approved.
In
January of 2005, WRG files an amended bankruptcy protection plan with a
Delaware court.
In
September of 2005, WRG opens a new China headquarters in Shanghai, which
consolidates four other offices in the country.
In
December of 2005, WRG announces they have spent $20 million in the year 2005 on
legal defense costs.
In
February of 2006, WRG announces it will open a new manufacturing facility,
costing $20 million, in Mt. Pleasant, Tennessee.
In
April of 2008, WRG reaches a tentative settlement on all current and future
asbestos-related claims, worth $2 billion.
In
January of 2011, WRG latest bankruptcy reorganization plan is approved by Judge
Judith Fitzgerald in Wilmington, Delaware.
In
January of 2012, WRG’s bankruptcy reorganization plan is approved by a judge of
the U.S. District Court.
In
November of 2012, WRG announces it will pay cash, not stock, to settle a larger
share of the asbestos-related injury claims against the company.
In
December of 2012, WRG announces its total payments to date with its bank
lenders, including interest is at $1.1 billion dollars.
In
February of 2014, WRG emerges from bankruptcy protection.
The
Wall Street Journal provided an excellent WRG trip summary.
WSJ
highlights:
- The original bankruptcy judge, Alfred Wolin, was ordered off the case under fire from distressed-debt investors who fretted he was too friendly with the asbestos plaintiff’s camp.
- A criminal indictment of the company and some executives, accused of knowingly allowing dangerous asbestos contamination to spread. WRG and its executives beat the charges, after a trial before a jury in Montana.
- Some dark comedy, such as the asbestos-disposal solution WRG pursued for years in a Minneapolis neighborhood: Advertise asbestos-contaminated material as “free crushed rock” and invite the neighbors to come haul it away to decorate their lawns, firm up their driveways. WRG cleaned up the contamination.
Was it
all worth it? Earlier this month, WRG
showed off its new 90,000-square-foot global headquarters building along with
several laboratories at its 160-acre Columbia, Maryland campus.
You
decide.
Monday, November 3, 2014
Promising Clinical Data on VS-6063 for the Treatment of Mesothelioma Presented at the 2014 iMig Conference
On October
24, 2014, at the iMig (International Mesothelioma Interest Group) Conference, Professor
Raphael Bueno, M.D., Chief of Thoracic Surgery, Brigham and Women’s Hospital
(BWH), presented preliminary data on Verastem, Inc.’s clinical ‘Window of
Opportunity’ study evaluating the biomarker response to VS-6063 (defactinib),
an oral small molecule that targets cancer stem cells through the inhibition of
focal adhesion kinase (FAK) in pleural mesothelioma patients (mpm) eligible for
resection surgery.
The
drug was administered to 10 patients twice a day, for 12 days, with biopsies
performed before and after the administration of the drug. Tumor size was
measured using CT/PET scans before and after the 12-day administration of
VS-6063.
VS-6063
reduced FAK activity by an average of 70%, and in 5 of the 7 patients reduced
the presence of cancer stem cell markers in the post-treatment biopsies. None
of the 10 patients saw any tumor growth in the 12 days, and 2 of the 10
patients experienced partial tumor shrinkage of -30%, and -49%.
“To
follow up on these encouraging results, the protocol is being amended to
explore more extended dosing in 10-15 additional patients with mesothelioma
prior to surgery,” said Dr. Bueno. “The window of opportunity before elective
surgery provides a novel platform for the clinical evaluation of promising new
agents for the treatment of this devastating disease.”
In addition
to the ‘Window of Opportunity’ study, Verastem is conducting a
registration-directed COMMAND (Control Of Mesothelioma with MAinteNance
Defactinib) study as a disease maintenance program following successful treatment
with Alimta and cisplatin in patients with mpm.
Verastem
also presented preclinical data at the iMig Conference which demonstrated the
ability of VS-6063 and the combination of VS-6063 and VS-5584 to target and
kill cancer stem cells in models of mesothelioma.
The
administration of drugs prior to surgery to suppress tumor growth is not new.
Many patients undergo chemotherapy before surgery in an effort to reduce tumor
size and minimize complications. The possibility of inhibiting the disease’s
production of a particular biomarker linked directly to tumor growth is very promising.
Verastem’s
approach to developing targeted therapies for mesothelioma has the potential to
not only improve treatment of this aggressive and deadly disease, but to offer new
hope to patients struggling with their disease.
For
more information on this study please visit: http://phx.corporate-ir.net/phoenix.zhtml?c=250749&p=irol-newsArticle&ID=1981229&highlight=
For
additional information on Verastem’s ongoing research into treatment therapies
for mesothelioma please visit: http://www.verastem.com/research/presentations.aspx
Tuesday, October 14, 2014
Over $95,000 raised for Mesothelioma Research--Pacific Meso Center’s 3rd Annual Walk/Hike for Meso a Tremendous Success!
Team W&C members Jim Parnel, Juniel Worthington, John and Suzanne Caron, with PMC Exec. Dir. Clare Cameron and Volunteers |
The
event was attended by several mesothelioma patients, as well as over 250
participants, many of whom are friends and family of persons whose lives have
been rocked by mesothelioma. Each kilometer was marked with signs sponsored by
families in memory of the loved ones affected by the disease. There were also
mesothelioma and asbestos facts scattered throughout the course, and a quiz at
the completion of the walk with prizes for the top scores.
After finishing the challenging hike along five kilometers of dirt paths in the hills above the ranch, hikers were greeted with cheers, an assortment of cold beverages and the hot R&B sounds of Cherry & The Bulldogs. Hikers were then rewarded with a delicious lunch from Ottavio’s Italian Restaurant, donated by owner Noella Belvedere who lost her husband Ottavio to mesothelioma in 2007. Noella and her family are no strangers to the cause, having raised more than $120,000 for mesothelioma research over the years.
When the dust cleared, the event raised $95,000 for much-needed research into lung-sparing treatments for mesothelioma. This amount exceeded PMC’s goal for the event for the third year in a row, and donations are still coming in! Friends and family of Gene Lepore brought home the honors for top fundraising team with their team, Team Gigi, bringing in $8,015. They were followed by last year’s top fundraising team, Irish Stampede, with $6,952, and Team Chuck Jarvis repeated last year’s third-place performance with $6,909.
The Worthington & Caron law firm is proud to have been the lead sponsor of the PMC Hike for Meso for the third year in a row. “This is a unique event which brings together families and friends of persons afflicted with mesothelioma to share camaraderie and sense of mission in a beautiful outdoor setting,” commented Worthington & Caron partner John Caron. “The event gets bigger and bigger every year, and has already become a tradition for many of the families who participate.”
After finishing the challenging hike along five kilometers of dirt paths in the hills above the ranch, hikers were greeted with cheers, an assortment of cold beverages and the hot R&B sounds of Cherry & The Bulldogs. Hikers were then rewarded with a delicious lunch from Ottavio’s Italian Restaurant, donated by owner Noella Belvedere who lost her husband Ottavio to mesothelioma in 2007. Noella and her family are no strangers to the cause, having raised more than $120,000 for mesothelioma research over the years.
Along the Dusty Trail!
When the dust cleared, the event raised $95,000 for much-needed research into lung-sparing treatments for mesothelioma. This amount exceeded PMC’s goal for the event for the third year in a row, and donations are still coming in! Friends and family of Gene Lepore brought home the honors for top fundraising team with their team, Team Gigi, bringing in $8,015. They were followed by last year’s top fundraising team, Irish Stampede, with $6,952, and Team Chuck Jarvis repeated last year’s third-place performance with $6,909.
PMC Scientific Advisor Dr. Robert Cameron Thanking the Hikers for Supporting Meso Research |
PMC’s Annual Walk/Hike for Meso is held in loving memory of Ottavio Belvedere, Bruce Bell, Mark Ganoe, Charles Jarvis, Sr., John Johnson, Gene Lepore, Gerry McCarthy, Kevin McCarthy, Rosa Gonzalez, Robert Vitale and to all those who have lost their battle with mesothelioma.
Wednesday, August 27, 2014
The Zumwalt Mesothelioma Treatment Program - The Best Medical Plan No Veterans Know About
Secretary McDonald - Please Notify Veterans There's No Waiting List at the Zumwalt Mesothelioma Treatment Program in Los Angeles
San Pedro, CA -- It's upsetting to read the allegations in the news about secret wait lists, cover-ups, shabby treatment, premature deaths and a culture of apathy permeating the Department of Veterans Affairs.
Zumwalt Meso Treatment Program The best medical plan no veterans know about |
San Pedro, CA -- It's upsetting to read the allegations in the news about secret wait lists, cover-ups, shabby treatment, premature deaths and a culture of apathy permeating the Department of Veterans Affairs.
What's equally upsetting is letting veterans suffer and die with either no or minimal treatment even though a qualified medical team is standing by and eager to treat them.
For months now, patients and advocates (including Lt. Colonel James G. Zumwalt, USMC (Ret.)) have been entreating former Secretary Shinseki and Under Secretary Petzel to simply notify patients and doctorswithin the vast VA network of the world-class treatment available to veterans suffering from mesothelioma as a result of service-related asbestos exposure. Now with the recent confirmation of VA Secretary Robert McDonald, veterans are optimistic of the changes being proposed but their trust has been undeniably compromised.
About a year ago, the VA Medical Center in West Los Angeles, California approved (but did not budget) the Admiral Zumwalt Mesothelioma Treatment Program. The program is headed up by Dr. Robert Cameron, a well-respected thoracic surgeon who has dedicated his life to the rational treatment of pleural mesothelioma, a cancer which disproportionately impacts US service veterans.
Dr. Cameron and his crew are eager to treat veterans. Unfortunately, despite multiple requests and promises, the VA has yet to perform the simple administrative task of updating its website and other social media about the existence of the program--notices that would alert veterans suffering from mesothelioma to the high quality treatment which is available to them. Neither the VA nor West LA VA websites even mention the program.
The mesothelioma treatment team at the West LA VA Medical Center would love to have a list of veterans to treat. But there's no list, no waiting list and no effort to educate our war heroes stricken with asbestos cancer that help is available.
According to the popular literature, about 4,000 Americans are diagnosed with mesothelioma each year. Of those, roughly a third were exposed to asbestos while serving in the Navy. It's not a stretch to surmise that at least 600 Navy veterans are diagnosed with mesothelioma every year--a diagnosis that carries a nine month life expectancy with no treatment and 11-12 months with chemotherapy only.
Mesothelioma is a rare disease and few doctors are either interested or qualified to treat it with the full arsenal of options available. It's a beautiful thing that a world-renowned surgeon like Dr. Cameron is willing to treat veterans, but it's sad that the VA has done nothing to help educate patients about his extraordinary talents.
Secretary McDonald, the request is simple: Will you please educate veterans and all caregivers within the VA system that the Zumwalt Mesothelioma Treatment Program is alive and well and eager to provide prompt, world-class treatment to veterans suffering from mesothelioma (without placing them on a long list!).
With new reports of the VA medical system's failures capturing headlines every day, what better time to finally bring attention to an area where the VA has gotten it right!
For more information, please contact Worthington & Caron (http://www.mesothel.com/) or 800-831-9399.
Monday, August 4, 2014
“The Greatest Escape” Motorcycle Rally for Meso - The Sequel
Sunday August 3 was the 2nd ever “Greatest Escape” Motorcycle Rally to raise funds for mesothelioma research conducted by the Pacific Meso Center. The Worthington & Caron law firm was proud to once again serve as the lead sponsor for this unique event.
The rally is inspired by the classic movie, “The Great Escape” starring the “King of Cool” and mesothelioma victim Steve McQueen. While there has never been a sequel to “The Great Escape” (and hopefully never will be!), the sequel to the first-ever “Greatest Escape” Motorcycle Rally turned out to be even better than the original!!
Heading North on PCH
The build-up to the
event was somewhat auspicious, as Los Angeles experienced an extremely rare
August rainstorm (any rain in LA is rare these days—but especially in August!)
which lasted overnight until about 30 minutes before start-time. But the
weather didn’t keep away the dedicated and enthusiastic group of motorcyclists
who turned out to support a very worthy cause and have a great ride up the
coast in the process.
This year’s celebrity
grand marshal was actor and motorcycle enthusiast (more accurately “fanatic”)
Perry King. Perry gave an inspirational send-off speech thanking motorcyclists
for being the most reliable segment of the general public when it comes to
turning out to support a worthy cause. He then reminded everyone about the real
reason we were all there—to raise funds for much-needed research into a cure
for mesothelioma, an asbestos-related cancer which disproportionately affects U.S.
service veterans as well as thousands of Americans from all walks of life every
year.
After that, it was
“kickstands up!!” With a full motorcycle escort, the likes of which is usually reserved for presidents and dignitaries, the “rolling thunder” of over 150 motorcycles of
all shapes and sizes (except for Perry King’s silent, but ultra-cool, Zero
E-Bike) roared through the usually clogged streets of Venice, Santa Monica and
Malibu without stopping for a single traffic signal!
"Twisting" Through the Canyons
Riders were treated to ocean views along Pacific Coast Highway and then rugged canyon views as the ride turned up Kanan Dume road. After negotiating the hills, “twisties” and tunnels of Kanan Dume, the ride turned down Cornell road for a final approach into historic Paramount Ranch, nestled in the hills above Malibu. It was quite a sight as all the bikes wound their way through the dirt streets of the western town movie set before it was “kickstands down” around the party pavilion at the ranch.
At the Ranch - John Caron (center) with Perry King (to his left) and Chuck Jarvis,
Jr. (to his right)
The riders were
joined by a healthy throng of supporters who drove their cars to the ranch to
be part of the fun. Everyone who made the trip got to enjoy an outstanding
barbeque lunch, cold beverages and the sounds of classic Johnny Cash songs
provided by the “Walking Phoenixes” band who were accompanied by the “Phoenix
Girls” dancers. Four proud bike owners were given awards for having the coolest
bikes in their categories, as voted on by the other riders.
Attendees bid liberally
on the outstanding auction and raffle items which were donated to the cause by
generous supporters. The prizes included two African safaris, a Keith Urban
guitar, artisanal glassworks and all sorts of motorcycle gear, with all of the
proceeds going to mesothelioma research.
Grand marshal Perry King brought along his friend, motorcycling legend Dave Ekins who, along with his brother Bud Ekins, was largely responsible for the growth of motorcycle racing in the United States in the 1950s and 1960s. Dave shared some little known facts about the motorcycling scenes in “The Great Escape” movie. Dave’s brother Bud did the stunt riding for Steve McQueen in the movie, including the famous scene where McQueen’s character attempts to jump the barbed-wire fence at the POW camp. DYK--it was Steve McQueen himself who added this scene to the movie as a condition for doing the movie.
Click here for to view the news story from local ABC affiliate KABC.
All in all “The Greatest Escape” Motorcycle Rally was an extremely fun event which raised much needed funds and public awareness for research into a cure for mesothelioma. Thanks to Clare Cameron and all her dedicated volunteers at the Pacific Meso Center for working so hard to make it a success. Worthington & Caron were proud to be a part of this sequel to “The Greatest Escape” and look forward to “playing a role” in many more in the future.
John and Perry; John taking Perry’s E-bike for a Silent Spin
Tuesday, July 29, 2014
The Greatest Escape; 2nd Annual Motorcycle Ride to Benefit Victims of Mesothelioma
Proudly Presented by
Worthington & Caron, P.C.
Join us and the Pacific Meso Center on a beautiful motorcycle ride along the California coast this
Sunday, August 3.
After the ride, join us
for a lunch, concert and additional fun at The Paramount Ranch in Agoura Hills,
California. There will be celebrity riders including our Grand Marshall, Perry
King!
Registration begins at:
8:30 AM and the Ride promptly begins at: 10:00 AM. The lunch will be provided
by J Wolf Catering & Concert begins and the digging in begins at 12:30 PM
Be sure to stay and
enjoy the music of The Walking Phoenixes-a Johnny Cash Tribute Band.
Click here for all the
details.
Thursday, July 10, 2014
University of Pennsylvania's Mesothelioma Program Receives $8 Million Grant from NCI
The National Cancer Institute awarded an $8 million grant to
the University of Pennsylvania’s Perelman School of Medicine to study the
effects of photodynamic light therapy (PDT) in patients with malignant pleural
mesothelioma. The grant will fund a
clinical trial and additional studies looking at the effects of PDT on the
patient’s immune response, the mesothelioma tumor cell , and the blood vessels
surrounding the tumor.
Dr. Eli Glatstein is the principal investigator of the
program. He is also the professor and vice chair of Radiation Oncology, and
member of Penn’s Mesothelioma and Pleural Program. According to Dr. Glatstein, “This trial represents a major step in
understanding the combination of treatment modalities that will offer patients
the best hope for survival and extended remission.”
The study expects to enroll 102 patients over four years. Patient will be administered Photofrin, a
photosensitizing agent that makes cancer cells more sensitive to dying from
light therapy, 24 hours prior to surgery.
The patients will then undergo a radical pleurectomy. The patents will then be divided into
two groups: half will receive PDT intraoperatively via an intense laser
inserted in the chest cavity during the surgery, along with post-operative
standard chemotherapy; and half who will receive only post-operative
chemotherapy. Photofrin absorbs the light from the laser and produces an active
form of oxygen that can destroy residual microscopic cancer cells left behind
after surgery.
“PDT has been a part of our treatment regimen along with a
lung-sparing surgery for many years, but a randomized clinical trial such as
this remains necessary to prove its efficacy,” says Glatstein.
PDT is known to kill cancer cells, but researchers also seek
to understand the patient’s immune response, the tumor microenvironment and the
blood vessels in and surrounding the tumor in three additional studies funded
under the grant.
“This trial will help
us understand how PDT works in the body and what we may be able to do in the
future to improve the body’s response to the therapy,” says Glatstein.
Click here for more.
Tuesday, June 24, 2014
Penn Medicine Receives $10 million Award to Study Asbestos Adverse Health Effects and Remediation of Asbestos
The BioRit Asbestos Superfund site is located in Ambler, Pennsylvania. Ambler is 20 miles north of Philadelphia.
From the late 1880s through the present day, Ambler
residents have had either occupational or environmental exposure to asbestos.
As a result, both current and former residents of the area face potentially
serious long-term health consequences.
The Community Outreach and Engagement Core (COEC) is an
organization whose mission is to effectively translate environmental health
sciences research findings into practical health promotion, disease prevention
information, tools and resources for our target audiences.
The Pennsylvania Department of Health, with the aid of the
COEC, has determined that there has been an increase in the rate of
mesothelioma in the Ambler area compared to the adjacent zip codes, with women
having a greater risk than men.
Researchers at the Center of Excellence in Environmental
Toxicology (CEET), Perelman School of Medicine at the University of
Pennsylvania, have been awarded a $10 million grant from the National Institute
for Environmental Health Sciences (NIEHS) over the next four years to study
asbestos exposure pathways that lead to mesothelioma, the bioremediation of
this hazardous material, and mechanisms that lead to asbestos-related diseases.
The Penn Superfund Research and Training Program (SRP)
Center, which was established by this grant, evolved as a direct consequence of
concerns from the Ambler community. The researchers are hopeful that continued
investigation and education will yield more information about exposure pathways
that led to these health risks. Click here for more.
Monday, June 9, 2014
Dr. Robert Cameron Chairs International Panel of Medical Specialists at 4th Annual Symposium on Lung-Sparing Therapies for Malignant Pleural Mesothelioma
Dr. Robert Cameron |
As in
years past, the course organizer and chair of the symposium was thoracic
surgeon and pleural mesothelioma specialist, Dr. Robert Cameron. An ardent supporter
of rational lung-sparing treatments for pleural mesothelioma, and innovator of the
pleurectomy/decortication (“PD”) surgical
procedure, Dr. Cameron is the founder and director of both the Comprehensive Mesothelioma Program at the UCLA Medical
Center and the Mesothelioma Treatment Center of Excellence at the West Los
Angeles Veterans’ Administration Medical Center.
Dr.
Cameron discussed how, because of the diffuse nature of mesothelioma tumors,
there is no advantage to removing the lung via extrapleural
pneumonectomy
(“EPP”), a radical surgery which involves removal of the pleura-based tumor
along with the adjacent lung, diaphragm and portions of the pericardium. Dr.
Cameron explained that, as compared to lung-sparing PD, “there are consequences
to extending the surgical field with EPP.” Dr. Cameron pointed to statistics
revealing a greater rate of “distant” tumor recurrence associated with EPP. He
noted that “distant” recurrences in areas such as the peritoneum are more
difficult to treat than “local” recurrences at or near the tumor bed.
In a
second presentation, Dr. Cameron addressed the latest developments in
intraoperative therapies to attack disease at a cellular level through
chemicals such as Betadine, as well as chemotherapy, thermal therapies, light
therapies and immune therapies.
Dr. Olga Olevsky |
Dr. Percy Lee, Chief of Thoracic Radiation Oncology and member of the Comprehensive Mesothelioma Program at UCLA Medical Center, gave an informative presentation on postoperative tomotherapy following PD. Dr. Lee explained how he and his team at UCLA work closely with Dr. Cameron to maximize effective delivery of radiation and minimize the risk of radiation toxicity utilizing the latest tomography technology.
A timely presentation regarding the challenges of treating veterans, who are disproportionally affected by mesothelioma, in the world’s largest healthcare system, and how the Mesothelioma Treatment Center of Excellence at the West Los Angeles VA Medical Center has overcome these challenges was provided by Graciela Hoal, RN, NP.
Dr. Irene I-Lan Wu, Assistant Director of the UCLA Pain
Management Center, gave a presentation regarding recent developments in
postoperative pain management therapies including intrathecal drug delivery and
spinal cord stimulators.
Dr.
Cameron speaking with Dr. I-Lan Wu and Dr. Lee (seated) |
International presenters, Dr. Jan von MeerBeeck, Professor of Thoracic Oncology and Director of Thoracic Oncology at the University of Antwerp, Belgium, and Dr. Joachim Aerts, Chief of Thoracic Oncology at Erasmus Cancer Institute in Rotterdam, Netherlands, gave presentations on recent studies involving state-of-the-art targeted therapies for advanced/inoperable mesothelioma and dendritic cell based immunotherapy.
Updates regarding research into innovative mesothelioma therapies involving mesenchymal stem cells and genes and molecular mechanisms being conducted at the Pacific Meso Center were provided by Research Scientists Raymond Wong, PhD and Irina Ianculescu, PhD.
Updates regarding research into innovative mesothelioma therapies involving mesenchymal stem cells and genes and molecular mechanisms being conducted at the Pacific Meso Center were provided by Research Scientists Raymond Wong, PhD and Irina Ianculescu, PhD.
Pacific Meso Center Executive Director, Clare Cameron |
Lastly, Pacific Meso Center Executive Director Clare Cameron gave a presentation about the role of non-profits in the fight against mesothelioma, and provided updates on the many resources available to mesothelioma sufferers through the Pacific Meso Center.
The
Pacific Meso Center plans to release videos of the symposium presentations on
its website in the coming weeks.
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